Information about pediatric liver diseases and transplantation

What Does CLA Do?

Disseminates educational information about pediatric liver diseases and transplantation via written publications, seminars and the Internet.

Provides a support network for families of children afflicated with liver disease (both pre and post-liver transplant).

Acts as liaisons between families and health care professionals and among all families.

Promotes the importance of organ donation and transplantation to the public.

CLA Services & Programs

The Biliary Tree. Our newsletter unites, educates and supports those affected by pediatric liver disease and transplantation. The Tree is read by thousands of families, surgeons, physicians, nurses, transplant coordinators and others interested in liver disease worldwide.

The Children’s Corner. The Corner is a special page in each issue of The Biliary Tree reserved for children only. It’s a chance for the kids to share what’s new and to tell their own stories.

On-Line Meetings. BALT’s on-line forum enables families and medical professionals worldwide to interact together discussing topics relating to pediatric liver diseases and liver transplantation.

Coalition on Transplantation. CLA, the American Share Foundation, The Nicholas Green Foundation and the World Children’s Transplant Fund have come together forming the American Share Coalition on Transplantation (ASCOT) to disseminate educational information about transplantation and promote organ donation. ASCOT’s Web site (http://www.asf.org) is the Official Web Site for the 1997 International Transplant Congresses.

Educational Seminars. In conjunction with other organizations and leading medical professionals, CLA provides education to families and others interested in pediatric liver diseases and liver transplantation.

CLA Library. Our library contains printed information, video tapes and web page links on all areas of pediatric liver disease, liver transplantation and organ donation.

Baby Formula & Medical Supplies Network. This program helps families provide adequate nutrition to their children with liver disease. Parents with surplus formula donate them to parents in need. All parents are welcomed to participate, regardless of financial status.

Spanish Division. All printed literature (The Biliary Tree, brochures, etc.) is translated into Spanish. In addition, Spanish-speaking families are available for telephone support.

Parent Matching. We bring parents together to provide support and create friendships. Parents are matched geographically, by age of child, by disease and/or similarities.

Support Team. Our telephone Support Team welcomes new families and provides emotional support as families start their journeys and during difficult times (hospitalizations, transplantation, etc.)

Tree House Club. Our children’s club allows children (five years of age and older) with liver disease, liver transplant recipients and their siblings to share their feelings and cope with their fears by linking up with each other through this pen-pal network (E-Mail pals also available).

Angels Above Us. Until cures are found for the many pediatric liver diseases and liver transplantation has been perfected, this group continues to serve as CLA’s bereavement support group.

Organ Donor Awareness. CLA provides information and resources to hold effective organ donor awareness campaigns.

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